Money Makes
the World Go Round . . .
AH, MONEY, SOMETHING that can be even scarier than sex! You may have
heard about how expensive the insulin pump is (roughly $5000 for the
pump and up to $150 to 300 per month for pump supplies). When I realized
I was walking around with something on my belt worth more money than
my used Honda, I was shocked! Fortunately, my insurance company paid
the entire cost of the pump and for my needed supplies.
People who feel a bit anxious about using such an expensive piece
of medical equipment, take note: Your insulin pump can be covered
by a renter's or homeowner's insurance policy. Insurance companies
will issue a special floater, as they would for an expensive piece
of jewelry.
It seems like all I do is fight with my insurance company over
how many blood sugar test strips I can get a month. I don't know
if I have the energy to take on another battle with pump supplies.
Again: Knowledge is power. The bureaucracy of managed health care
can be mind-boggling; still with a little effort, you should be
able to break through the red tape and reach a real live person.
Ask to speak with a manager or head of department; find out exactly
what your insurance will cover. More and more, many American states
are mandating coverage for diabetes supplies and this will cover
the insulin pump and pump supplies. Fortunately, Medicare now covers
the cost of the insulin pump for people with type 1 diabetes.
What is even better is that the major pump manufacturers-Animas,
Disetronic, Medtronic MiniMed, and Sooil-all have trained professionals
on their staff, whose entire job is to advocate for you to your
insurance company. They know which companies are easy to deal with,
which are more difficult, and how to convince them that the insulin
pump is a medical necessity for you. Slowly, insurance companies
are realizing that in the long run, they will save tremendous amounts
of money if people with diabetes can achieve optimal blood sugar
control and so avoid complications. As stated, insulin pump therapy
has proven to be key in tight control.
Kathy Kochan remembers that when she ordered her insulin pump six
years ago, it took a good six months for her to get insurance approval.
"I was ready to go, but I had to sit around and wait for the
insurance to get straightened out," she recalls. Fortunately,
most pump companies are able to work with insurance companies so
there is only a two- to three- week delay from the time you make
your decision to pump.
Interestingly enough, there appears to be a correlation between
people living in countries with managed health care, in which money
is not an issue around supplies, and good diabetes control. Disetronic
is a Swiss-based company with large markets in Western Europe. Their
studies show that people living in Scandinavia, the Netherlands,
Germany, and France-for whom getting on pump therapy involves very
little red tape-have an 85 percent better rate of optimal diabetes
control than people living with diabetes in the United States. Medtronic
MiniMed has a majority share of the insulin pump market in such
countries as Italy and Israel, and finds the same to be true there.
For being the "richest" country in the world, the United
States has much to learn about providing adequate health care for
all. Sadly, in developing countries with very poor health care systems,
pump therapy is virtually nonexistent in the present time.
By the way, if you are a citizen of the United Kingdom and are
concerned about medical coverage for your pump, check out the Web
site www.insulin-pumpers.org.uk. This site includes lots of good
information about how to best work with the health care system there,
to insure financing of your pump.
I've been approved by my insurance to get started on a pump.
But I'm worried that my insurance will give me problems about the
monthly supplies, which seem pretty hefty. And what if I change
jobs. What then?
There is no doubt that for most American citizens, dealing with
insurance issues can create many headaches. When it comes to pump
therapy, there may be problems that arise.
Mort Waldbaum is now well adjusted to life with the pump but is
still struggling with Medicare. "Medicare allows me thirty
infusion sets for ninety days," Mort explains. "But I'm
on a heart defibrillator that takes up room where my insertion sites
would be. When I'm looking for a good site, I could go through 2
to 3 sets each time I try to insert one. And Medicare won't pay
the difference." Especially for senior citizens living on a
fixed income, this kind of challenge can be daunting.
Changing jobs can also cause insurance nightmares. Carys Price
recalls the outcome of a job change. "It was a major headache.
Getting my pump supplies with my new insurance became the biggest
headache in the world. I would order supplies from one of these
big companies, and wait and wait. Where are these people? When you
call and leave them a message, they don't call back," she reports.
Eventually, Carys got her annoying insurance situation straightened
out, but not without a good deal of energy and effort. I've gone
through three insurance changes during my three and a half years
on the pump, and fortunately, I can't complain. Again, since the
pump companies have professionals on board who will do the legwork
for you, I give it over to them and let them handle it. I've had
success every time.
One more bit of good news: Insulin pumps are constantly improving
with better technology, and most insurance companies will approve
you for a brand-new insulin pump every four to five years. Again,
check with your company to find out their policy on upgrading pumps.
My doctor wants me to go on an insulin pump, but my husband
recently got laid off from his job and we're going to lose our health
care coverage. I don't know when we'll get new insurance. How can
I consider taking my doctor's advice?
For people without insurance or with plans with inadequate coverage,
don't despair. Contact your local ADA or JDRF and find out about
financial assistance for pump users. Also, both the Lions Club and
the Rotary Club, in certain areas, offer scholarships to help pay
for pumps. In Canada, a special charity called S.U.G.A.R. helps
people pay for pumps; you can find them on-line at www.sugarcharity.org.
I've heard about people without health insurance who have done
fund-raisers to help earn money to buy a pump. At some point or
another, most of us have to ask for help with something in our lives.
You may be surprised by how many people would be willing to donate
a few dollars to the cost of your pump. I know how hard it is to
ask for help. But above everything-even your pride-should be concern
for your health.
You may also want to explore getting a DANA pump from Sooil, a
Korea-based manufacturer. Sooil has recently opened their market
to the United States and Western Europe, and is willing to offer
a special payment plan through some distributors. Go to www.danapumps.com
for more information.
But suppose my pump just breaks one day, or what if I have a
freak accident. Is my insurance company going to pay for another
pump?
Should anything happen to your pump, you have no worries. All of
the major pump companies offer a four-year warranty, which means
that they will replace your pump at no cost to you. Remember, after
four years you are eligible for a pump upgrade, so once you get
your new pump, you will then have a new four-year warranty.
Talk with the manufacturer of the pump you are interested in purchasing
and become clear on its policy. All of the companies will strive
to replace your pump within twenty-four hours; some will even have
a customer service representative drive a pump out to you so that
your wait is only a few hours long. Interestingly enough, Disetronic's
top-selling pump is still the H-Tron Plus, even though a newer model,
the D-Tron comes with more sophisticated features. The reason for
the H-Tron's popularity is that when you order one, you receive
two pumps automatically, so you would never have to switch back
to injection therapy (even for a few hours) if you lost or broke
your pump. Other companies, such as Animas, will lend you a second
pump if you plan to travel overseas or have a child going away to
camp. When you (or your child) return from wherever it is, you simply
have to return the back-up pump to them. That's what I call service!
TOP TEN
WAYS TO DEAL WITH MONEY AND INSURANCE ISSUES WHILE PUMPING |
1.
|
Educate
thyself: These issues will be less scary if you
know exactly where you stand with your health coverage.
|
2.
|
Pick
a pump company and let the insurance department
handle negotiating for you. |
3.
|
Make
sure your doctor is on board and is willing to write
a letter of medical necessity for you. Also, keep
good blood glucose logs to prove to the insurance
company that you need a pump. |
4.
|
If
you are on Medicaid or Medicare, you can pursue
full coverage of your insulin pump. |
5.
|
If
you want extra peace of mind, you can take out an
insurance policy on your pump. |
6.
|
Be
patient: Even once you've made your decision to
choose pump therapy, dealing with your insurance
company can delay your getting started for a few
weeks. |
7.
|
If
you are already pumping, find out when you are eligible
for a replacement pump. |
8.
|
If you do not have insurance or adequate coverage,
plan to fund-raise for your pump. |
9.
|
Again,
keep a sense of humor: Laughing at the red tape
of insurance companies is healthier than getting
stressed out by them! |
10.
|
Donate
money to your local ADA or JDRF to establish a fund
for insulin pumpers in need. |
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More
Info
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ABOUT THE AUTHOR: Gabrielle Kaplan-Mayer
is a writer, performer and educator. She is the author of several
plays and one-woman shows. A 1993 graduate of Emerson College
with a B.F.A. cum laude in performing arts, she also earned
a Master's degree in Jewish studies at the Reconstructionist
Rabbinical College. Gabrielle currently teaches playwriting
for the Philadelphia Young Playwrights Festival and is a Consultant
in the Creative Arts for the Auerbach Central Agency for Jewish
Education. She has had diabetes since she was ten years old
and has been on the pump since 1999. Her website is http://www.insulinpumpbook.com |
From the book Insulin
Pump Therapy Demystified
Copyright © 2003 by Gabrielle Kaplan-Meyer
Appears by permission of publisher, Marlowe & Company, a division
of Avalon Publishing Group.
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